Donna Thomson

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THE ABCDs OF INCLUDING CAREGIVERS IN COMMUNITY


By Donna Thomson, 2015-06-11

I shared this blog in my caregiver circles today!

John McKnightand Jody Kretzmannare social design visionaries who understand that everyone has a role to play in enabling healthy, inclusive communities.They founded theAsset Based CommunityDevelopment Institute, or ABCD.Building on the skills of local residents, the power of local associations, and the supportive functions of local institutions, asset-based community development draws upon existing community strengths to build stronger, more sustainable communities for the future.
The principles of ABCD are important for everyone, but especially for families living with age or disability related challenges. The core tenets of Asset Based Community Development are rooted in the desire to build a movement for social change. ABCD believes that:
1. Everyone has gifts: each person in a community has something to contribute
2. Relationships build a community: people must be connected in order for sustainable community development to take place
3. Citizens are at the center: citizens should be viewed as actorsnot recipientsin development
4. Leaders involve others: community development is strongest when it involves a broad base of community action
5. People care: challenge notions of "apathy" by listening to people's interests
7. Listen: decisions should come from conversations where people are heard
8. Ask: asking for ideas is more sustainable than giving solutions
How does John McKnight say we can achieve these goals? By talking to our neighbours! For caregivers, I want to repeat #4 that leaders involve others and that community development is strongest when it involves a broad base of community action. We are allleaders. The challenge for caregivers is how to spread the word about the joys and challenges of our lives as we mine for information about neighbours' interests and abilities they might share. If someone has helped you, thank them (publicly, if possible). If your local grocery store has delivered your order when your loved one was ill, ask the manager how you can spread the word about his staff's kindness. When friends offer to help you, ask 'what do you LIKE to do... what are your interests?" Then say, "We'll start with your interests and then match those up to our needs." Listen first. These are a few ways we can build capacity in neighbourhoods.
Be a listener, ask for ideas, believe in the power of relationships to build a movement for neighbour to neighbour sharing. Our caregiving families have assets that are important in neighbourhoods - we embody qualities that make us all more deeply human: love, empathy and altruism. I remember meeting a caregiving activist from British Columbia. On a regular basis, she held soup dinner at her home (she cared for an adult child with developmental disabilities and for her elderly father as well). She knocked on her neighbours' doors (even though she didn't know some of them) and invited them to bring an ingredient to make soup. Everyone came and everyone brought food. What was her secret for community building? She asked. She invited. She opened her door to neighbours. We can do this, and the results will benefit everyone.
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Celebrating Royalty and Nobility in Ordinary Caregiving
So Brother Matthew locked the gate behind me, and I was enclosed in the four walls of my new freedom.
Thomas Merton

Caregivers like me know how the four walls of home can sometimes close in and feel like a prison. How to find freedom, satisfaction, meaning and joy within those walls was the subject of my book,"The Four Walls of My Freedom: Lessons I've Learned From a Life of Caregiving".

Thomas Merton was an American Catholic writer and mystic. He entered the Abbey of Our Lady of Gethsemani in rural Kentucky on December 10, 1941 to begin a life of solitude and contemplation. In his hugely popular book, "The Seven Story Mountain", he described that moment this way: "...So Brother Matthew locked the gate behind me, and I was enclosed in the four walls of my new freedom." I did find a sense of personal freedom and meaning in the ordinary tasks of caring over years. I learned to look more carefully, listen more intently, feel more acutely. I learned to celebrate the ordinary.53_blogs.jpg?width=400

This week, I've been following an inspiring story about celebrating the ordinary on the internet. It all started with this posting on the popular site, Humans of New York:
"Who's influenced you the most in your life?" "My principal, Ms. Lopez." "How has she influenced you?" "When we get in trouble, she doesn't suspend us. She calls us to her office and explains to us how society was built down around us. And she tells us that each time somebody fails out of school, a new jail cell gets built. And one time she made every student stand up, one at a time, and she told each one of us that we matter."


Then this story appeared:54_blogs.jpg?width=400

A couple days back, I posted the portrait of a young man who described an influential principal in his life by the name of Ms. Lopez. Yesterday I was fortunate to meet Ms. Lopez at her school, Mott Hall Bridges Academy.

This is a neighborhood that doesnt necessarily expect much from our children, so at Mott Hall Bridges Academy we set our expectations very high. We dont call the children students, we call them scholars. Our color is purple. Our scholars wear purple and so do our staff. Because purple is the color of royalty. I want my scholars to know that even if they live in a housing project, they are part of a royal lineage going back to great African kings and queens. They belong to a group of individuals who invented astronomy and math. And they belong to a group of individuals who have endured so much history and still overcome. When you tell people youre from Brownsville, their face cringes up. But there are children here that need to know that they are expected to succeed.

And I thought, we are like the children at Mott Hall Bridges Academy - we may be invisible and ordinary on the outside, but we are ROYAL. We too, "have endured so much history and still overcome."So, the next time you are feeling invisible and unappreciated, imagine Ms. Lopez' voice in your head. "You are a nurturer, an enabler. When the dignity of someone you love is under threat, you restore it. You are a healer. Your hands soothe and your voice comforts. You are a conjurer! When shopping for food has been put aside for more important tasks, you find something nourishing to create from what's left over. Never forget, the worth of a life is measured in how much love we have given, because what we give will come back to fill our hearts tenfold."

Today, let us recognize and celebrate the dignity, value and even royalty of ordinary caregiving. Because Ms. Lopez would say that there's nothing ordinary about it.
Last edited by Donna Thomson; Today at03:55 PM.
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How can we help our loved ones experience meaning and purpose in their lives?Does having a disability, getting older, or losing cognitive skills automatically exclude the possibility of purpose in life? In my family, meaningful contribution is central to happiness.I believe it is for most people.Our son Nicholas is 25 and mostly bed-ridden due to severe cerebral palsy.He is non-speaking, but nevertheless communicates effectively with the combination of a few words, tongue clicks, hand gestures and in a pinch, a switch activated computer system (its slow and labor intensive).

Since Nick finished school, weve searched for how he might find a meaningful job.Hes tried selling on E-Bay (he still does that from time to time) and he writes a sportsblog(which he enjoys).But his recent foray into creating and managing sports betting pools is the magic bullet for meaning and purpose in Nicks life, currently.The sports addicted members of our family and best friends all participate in annual NHL (ice hockey) pools and currently, in a world cup soccer one as well.Nick is the commissioner and his role comes with weighty responsibilities.Prior to the season or tournament, Nick convenes all the participants for the player draft in his room.Pizza and beer are served and participants who live out of town join in via Skype.Lots of trash talking ensues as everyone picks their players and creates their own fantasy team.Nick decides how points will be awarded and over the course of the season, he sorts out problems, answers questions and at seasons end, grudgingly awards the grand prize to the winner.The betting pool is a source of purpose for Nicholas, but it has the added benefit of keeping friends and family socially engaged with Nick in a purposeful way.The guys in the pool all want to win!

My Mom craves meaning and purpose in her life too.A couple of weeks ago, she threw me a curve ball when she remarked, Ive got it in my craw that I want to get a job.This, from a feisty, but tired 92-year old who rarely has the energy to dress up in anything but a fancy nightgown most days.My sister and I put on our thinking caps.Knitting for premature babies perhaps?Then, I happened to see an article online about a seniors home in Chicago that paired up with an English language school in Sao Paolo, Brazil to have weekly English conversation practice sessions via skype.Watch the video its so deeply heart-warming.

This is meaning and purpose without leaving home or getting dressed up.So, I showed the program to the manager of Moms home and I hope someone will run with it there.But as a Plan B, Im looking for a trusted person in my network, too, who seeks conversational English practice with a native speaker who has plenty of time and a good sense of humor.
Meaning in someones life can be a highly individual affair.People with severe Alzheimers or dementia can sometimes find profound purpose in singing to a doll.The primal memories of nurturing children manifest themselves in cradling a doll or even a pet.Once we get past judging these activities as being possibly unworthy (on a normal scale) or even creepily unnatural, we can begin to glimpse how life affirming they are. Put your assumptions about what constitutes a meaningful life aside for a few moments and watch this video.
Meaning and purpose through contribution is absolutely central to everyone's happiness and wellbeing. Our challenge as caregivers is to find a meaningful activity or interest in the life of our loved one, make it accessible and then share it and celebrate it. Very often, it can mean the difference between happiness and despair.
Donna Thomson is the author of 'The Four Walls of My Freedom: Lessons I've Learned From a Life of Caregiving' (House of Anansi Press, 2014). Her book is available from all major booksellers in the USA and Canada.
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